I wanted to let you know that they listed Dyamond for a liver and a kidney this morning. I know the kidney is probably new news to you. During her liver evaluation at the Nebraska Medical Center in March, her blood work showed that her kidney function as around 50%. In June, they did a kidney biopsy and the results showed that she needs a kidney as well as the liver.

Dyamond’s Diagnosis:
Liver: Progressive Familial Intra Hepatic Cholestasis – Type III
Kidney: Advance Global Glomerulosclerosis
Blood: Congenital Hemolytic Anemia

Yesterday, when the surgeon asked Dyamond how she felt about everything. She said that she feels good about it and that is wants to get it over with soon and would like to only have to go through one surgery, not separate ones for each organ. The surgeon said is what she wants also and that she will do everything she can to make that happen.

They drew blood from both David and I and are testing it to see if one of us would match for a living-related kidney donor. They would like to have a living-related donor, non-related donor or a cadaver donor, the success rate is higher in that order. They will be using a cadaver liver, for sure and with a related or non-related kidney, they could do both organs at the same time and she would only go through one surgery.

We are on an hour notice now, when we get the call from Omaha that they have an organ(s), we will have to be on the road to Omaha within an hour. We will not be able to travel outside of a three-hour radius of Omaha until after Dyamond is transplanted. We have to be able to walk out of our lives within an hour for eight weeks minimum. We will be relocating to Omaha for 8-12 weeks.

We are all doing well and I will update this site as I have new information.